Mumbai : 5-month-old Teera battling rare disease to receive Rs 16 crores’ injection, Modi Govt. waives Rs 6 crore tax

Mumbai : A five-month-old girl is suffering from a rare disease in Mumbai. Five-month-old baby girl Tira Kamat is being treated at Mumbai’s Suburban Hospital, where she is fighting a battle of life and death on a ventilator. Teera Kamat is battling a rare disease called SMA Type 1. To recover from this disease, the girl needs an injection that costs Rs 16 crore.

According to media reports, the injection which is effective in the treatment of this disease is coming from America. The price of this injection is said to be 16 crores. Teera Kamat’s parents are not capable enough to afford such an expensive injection. For this, they resorted to crowd funding. By making a page on social media, Teera’s parents raised Rs 10 crore by January 14 through crowd funding. But it was still insufficient.

The biggest thing in the treatment of the girl child was that about 6.5 crore tax was to be levied. However, with the intervention of BJP leader Devendra Fadnavis, the Modi government waived all taxes on injection (23 per cent import duty and 12 per cent GST), which is worth around 6.5 crores. In fact, Devendra Fadnavis had written a letter to Prime Minister Narendra Modi after this matter came to the fore and requested that all taxes on this injection coming from America be exempted.

Due to this step of the Modi government and with the help of the people, the way for the treatment of baby Teera has now opened. The injection will be ordered from the US soon. It is being told that the child will be treated using gene therapy. The surgery performed on her will bring back the same gene that was missing during her birth. According to the child’s parents, Teera was healthy at birth, but gradually her health started deteriorating later.

Spinal muscular atrophy type-1 is a rare disease. Children who suffer from spinal muscular atrophy type-1 have weak muscles, lack of water in the body and have difficulty in breastfeeding and breathing. In this disease, the child becomes completely inactive.